April 07, 2016

What is this PAIN!?


Let's talk about pain, Sadie's pain.

Sadie has a very high pain tolerance.  She can hit her head, be poked with a needle, hit by a ball, fall off her chair and very randomly does she ever cry. She'll just look at you like "what was that for" and then she goes about her own business.  However, that high pain tolerance only holds true for external pain.  When it comes to internal pain, this girl will let you know.  Then the guessing game begins.

Our thoughts always go straight to her gut.  Is she constipated? Maybe we need to vent her tummy?  And generally fixing those 2 problems will solve the pain issue.  But recently (since January) her constipation issue is getting harder to fix.  We used to be able to give some miralax and/or a suppository and problem solved and she would be good again for another few months.  Her constipation was not an everyday occurrence, just an every few months issue.  Well that is not the case now.  She seems to be more constipated, then not constipated.  Why all of a sudden her gut is having this issue all the time is beyond me.  I increased her bowel meds and added other meds and took away meds and adjusted other meds and finally I got her to a somewhat normal happy bowel regimen.  Her poop was good, no more constipation.  We went a week and half. No screaming in pain and good bowel movements.  Yay, momma fixed the problem!  Another point for me. Until one day the screaming in pain returned. NOOOO! It could not possibly be constipation, I have that problem under control.  So what is it?

I talked to her Dr and we went over all of her systems; neuro, resp, gi/gu, skeletal, immune etc... Everything was negative.  I still felt like it was a gut issue, so we got a consult for a GI Dr.  Yes, we had to add yet another Dr to Sadie's list of specialists.  Honestly, it's actually a little surprising that we have waited this long to add one, especially with all the gut issue that she's had the last 2 years.  Yay! for us for holding out this long.

The GI office called and the appt was set for about two weeks away.  Which was fine, we had gone this long, we can survive another couple of weeks.  I was wrong!  One day she started screaming, I did all my tricks, including giving pain meds and it wasn't working.  She just continued to scream, rolling all over the place, grabbing her stomach/chest.  I couldn't take it anymore. I started crying and getting so frustrated cause I felt so bad.  This poor child has been screaming in pain since January!! That's it, I've had it, I'm taking her to the ER!  I can't handle that painful scream anymore.  We got ready and right as I was going to walk out the door, the screaming stopped and she passed out from exhaustion (which is her normal way of coping, it just took way longer this time).  I then calmed down and started calling her Dr's.  Something has got to give! Her Dr got her GI appt moved up and her nutritionist was going to look over her diet and talk to the Dr about possibly changing her diet to see if that is the issue.  I had multiple people working on different things to try to help this little girl.  Something has got to give... and SOON!

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